Skip to content

The Girl With Kidney Failure

Just a young girl, learning to deal with her kidney failure

  • Home
  • About
  • Contact

One Year Post Transplant

November 7, 2018 The Girl With Kidney Failure2 Comments

I have been really silent on this blog. The only excuse I can give you is that have been BUSY! I spent the last year catching up on life. It might sound dramatic but there were so many little things I could not do while I was ill. There were also so many things I… Continue reading One Year Post Transplant

CMV Post Transplant

August 13, 2018August 13, 2018 The Girl With Kidney Failure1 Comment

If you follow me on Instagram, you will know thatย  I recently found out that I am CMV (Cytomegalovirus) Positive. I received a lot of messages from people asking if I was fine and wanting to know what was going on. I thought it might be easier to write about it. CMV is not dangerous… Continue reading CMV Post Transplant

So what has changed?

April 3, 2018April 3, 2018 The Girl With Kidney Failure4 Comments

Every time someone sees me since my transplant, they always ask me how I am feeling now. I guess its a valid question. Everyone says I look so different so it makes sense that they would want to know if ย I feel any different. There are good things that have changed and there are some… Continue reading So what has changed?

Fitness + The Transplant Games

January 15, 2018January 15, 2018 The Girl With Kidney FailureLeave a comment

Ah, the transplant games. I remember when I was diagnosed initially and I was doing my work-up for the transplant list, my transplant co-ordinator mentioned the transplant games. I didn’t think much of it then. I had just been diagnosed and all I knew is that I wanted a new kidney. Lets go back in… Continue reading Fitness + The Transplant Games

General Isolation- Post Transplant Part 2 + going home

January 12, 2018January 12, 2018 The Girl With Kidney Failure4 Comments

In my last post transplant blog post (here) I was on Day 5 of my recovery and I was peeing on myself. This resulted in the nurses having to put a bedpan next to my bed as I could not make it to the bathroom in time. My days literally consisted of me getting up… Continue reading General Isolation- Post Transplant Part 2 + going home

Kidney disease awareness speech

December 3, 2017 The Girl With Kidney Failure1 Comment

Today I was asked to speak at an event to raise awareness for kidney disease. They were also raising funds for Tygerberg Renal Unit. If you’re interested, read what I had to say below. Today was also the first day that I left the house since my transplant! I only went out for an hour… Continue reading Kidney disease awareness speech

ICU- Post Transplant Part 1

November 27, 2017November 27, 2017 The Girl With Kidney Failure2 Comments

The last two weeks have been a roller coaster. I have been struggling to find the motivation to actually write a blog post because I am adjusting to an overactive kidney and a ton of medication. So now I am taking some time to myself and I am going to write an honest post about… Continue reading ICU- Post Transplant Part 1

Posts navigation

Older posts
  • Facebook
  • Instagram
  • Twitter

Amina Parker

Hi! My name is Amina and welcome to my blog. Read all about my journey with kidney disease. Hope I can be of help towards someone else that is diagnosed.

Search

Archives

Photos

๐Ÿ“ท: @_zahraa
February is my favorite month ๐Ÿ˜›
๐Ÿ‡ฎ๐Ÿ‡ณ
Incredibly lucky to have my sister as my best friend ๐Ÿค— #MyBigFatParkerWedding
I finally wrote another blog post! I wrote all about my experience with CMV, the symptoms I have and a little bit of advice. A quick update on my test results: unfortunately I am still CMV positive but I will be retested in two weeks time. My numbers have improved dramatically and my doctor is happy with my progress. My little kidney is also looking good and has gone back to being perfect. You know where to find the link ๐Ÿ™„๐Ÿ™‹โ€โ™€๏ธ
For the first time since my transplant, Iโ€™m actually sick. I have a transplant related illness ๐Ÿคท๐Ÿปโ€โ™€๏ธ I know Iv been really silent on instagram but purely because I was enjoying my life. But hereโ€™s what happened in the last two weeks. I felt weird. My body hurt, my head hurt and I just didnโ€™t feel like myself. I decided to blame the blood moon ๐ŸŒ luckily for me, I had a routine check up with my doctor and it turns out, I am CMV Positive. CMV is a relatively safe virus for a normal person. But not for someone with a suppressed immune system. My viral load is insanely high and I have no idea what to do with myself. I have no energy and absolutely no appetite. Iv been going to work (purely because I have no sick days to take off) but I am not productive. I wish I could say this post transplant journey is rosy but itโ€™s not. Just when you think youโ€™re perfectly healthy, youโ€™re hit with something new. So what now? I am currently on a very strong antibiotic and we will see if I am still CMV positive in two weeks time. I guess I will keep you updated and share a little bit about CMV over the next two weeks.
Six months ago, this time I was ridiculously high on morphine and peeing like a mad person ๐Ÿ˜› Happy 6 month kidney anniversary to me!
I wrote a new blog post about how life has changed since my transplant. The good and the bad. Firstly, chicken nugget addiction is back ๐Ÿ˜‚ you know where to find the rest ๐Ÿ™„๐Ÿ’
I told everyone today that Iโ€™m 23. It was all going well until I was surprised with this cake ๐Ÿ˜‚

Enter your email address to follow this blog and receive notifications of new posts by email.

Blog at WordPress.com.
The Girl With Kidney Failure
Blog at WordPress.com.
Cancel